So after 3 weeks and almost 2 days here is an update to how I am doing.
I went to the doctor on Wednesday to get a referral to a fertility specialist. I will definitely keep you posted on how that goes. I don't know what the doctor will say. It feels so odd to be going to a fertility specialist when I have never even tried to get pregnant before. I am definitely in the minority for several different reasons. What sucks is even if the doctor wanted to get started right away, there are many things to consider before getting pregnant. The primary concern, of course, is money. We need a lot of money to have a baby and then a lot more to care for the little bundle of joy. It is a rough road we are on, but it is the only road for us.
I still haven't cried. If I wanted to, I could of course, but that would require a lot of dwelling on the bad. It can't be changed so I am choosing to set that aside. However, it is always in the back of my mind. I get jealous when other people do so easily things that I cannot do. I also get pretty down when I think about the things that a short life takes away from me. The good news is, it isn't guaranteed that it will be taken away forever. I am still working on a list of supplements and way to delay symptoms as long as I can. I will truly be grateful for any extra time I can get before I am mentally gone from this world. I also remain hopeful for a treatment.